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OTTAWA-GATINEAU MULTIPLE MYELOMA COMMUNITY NETWORK  supporting patients with myeloma

2023 Spring Zoom Meeting Agenda

The Ottawa-Gatineau Multiple Myeloma Community Network invites Myeloma patients, family, caregivers and friends to our 2023 spring monthly information and sharing meetings. The mission of the Community Network is to provide hope and to empower Myeloma patients, family, caregivers and friends through education, advocacy, patient care and support and sharing experiences.

Based on the feedback from our patients, the continuing uncertainties surrounding Covid -19 and the critical importance for myeloma patients to physically distance we will continue to hold all our spring sessions on Zoom. Please contact either Robin Sully or Jean Shepherd at the below emails if you are new to the group and would like to participate in the sessions. The meetings will start at 7:00PM and last an hour and a half.  Zoom details to join the meetings will be provided prior to each session. We look forward to “seeing” you!

Wednesday, February 1st we will be joined by Martina Elias, Executive Director Myeloma Canada (MC) and her colleague Aidan Robertson to talk about MC, the drug approval process in Canada and MC’s advocacy engagement to help ensure our access to new treatments.

Wednesday, March 1st  will be a share and care meeting. A chance to meet new members; share experiences with myeloma patients and caregivers; and to catch up on recent local and national myeloma advocacy,  education, research and fundraising initiatives.

Wednesday, April 5th  we will be joined by  Dr. Alissa Visram who will talk about new developments in myeloma research and treatments at OGH and nationally.

Wednesday, May 3rd (to be confirmed)  Dr Sofia Lebel, U of O,  will join us to consider and discuss cancer recurrence anxiety among myeloma patients. 

Wednesday, June 7th (to be confirmed) Thrombosis is a frequent and potentially life threatening side effect of myeloma treatments. Dr A. Delluc has been invited to talk about the incidence of thrombosis, its diagnosis and treatment. 

Come join us virtually!

For more information on the Ottawa –Gatineau Community Network please contact: Robin Sully at 613 622‑5461; [email protected] or Jean Shepherd at 613 277‑4886; [email protected]