Our publications cover every aspect of myeloma. They are educational resources for patients, family members, caregivers, and healthcare professionals. We also provide publications from associations affiliated with Myeloma Canada.
You can download most of these publications or order a free copy by sending an email to firstname.lastname@example.org or by calling us at 514 421‑2242 or toll-free at 1-888 798‑5771.
Myeloma Canada Publications
Multiple Myeloma Patient Handbook
Designed to provide educational support to patients, caregivers, families, and friends, this handbook gives accurate, reliable, and clear information on myeloma. Topics cover its causes and effects, how it is diagnosed, and the treatment options available in Canada.
You may find the information overwhelming at first, but do not worry. The more times you refer to the material, the easier it will be to understand. Over time, you will have a better grasp of the disease and an understanding of what you can do to optimize your quality of life.
Multiple Myeloma Caregiver Handbook
Like most cancers, multiple myeloma impacts more than just the person living with the disease. Caregivers experience their own set of challenges and must manage their own stress levels and energy reserves, all while supporting their loved one when they are receiving treatment, managing day-to-day care and navigating the healthcare system. If you are supporting a loved one living with myeloma, you are a caregiver—and this Handbook is intended for you. It provides practical information about caring for your loved one and maintaining your own well-being.
NEW! Generic drugs in Canada
Now that new generic versions of some drugs commonly used for the treatment of multiple myeloma were approved, you might have some questions. What are generic drugs, or ‘generics’? How are generic drugs tested and reviewed? What if my body reacts differently to a generic drug?
In our first InfoSheet, we’ve put together answers to address some of the main questions you may have regarding generic drugs. If you have another questions that pertain to your specific situation, it’s always best to consult with your healthcare provider
Financial Implications of Living with Myeloma
If you or your loved one has been diagnosed with myeloma, you know how challenging it can be to find information that can help you manage your finances.Treatment can affect a person’s ability to work, remain independent, and be socially involved.
In response to the many financial-based questions and concerns we receive from our community members, Myeloma Canada has created a new web-based document called Financial Implications of Living with Myeloma. This guide was designed to provide you with reliable information you need to help you better understand the financial resources available to you on a federal, provincial and territorial level.
MGUS and Smouldering Multiple Myeloma
Myeloma Canada’s MGUS and Smouldering Multiple Myeloma InfoGuide has been created specifically for people diagnosed with monoclonal gammopathy of undetermined significance (MGUS) or smouldering multiple myeloma (SMM) – also known as indolent or asymptomatic multiple myeloma (MM) – and their family and friends.
The InfoGuide is intended to help you understand what these two conditions are, how they are diagnosed and how they may be managed by your healthcare team. Not all people with MGUS or SMM experience the same symptoms or carry the same risks of developing another related condition. It’s important to understand your condition, the impact it can have on your day-to-day life and on your overall well-being.
Managing Pain & Fatigue
If you’ve been diagnosed with myeloma, you know how challenging it can be to cope with pain and fatigue caused by the disease itself, side effects related to treatment, as well as medical tests or procedures. Pain and fatigue make day-to-day life more difficult. Myeloma Canada’s newest InfoGuide is written expressly for people living with myeloma, their families and friends. It’s intended to help you understand, manage and cope with your pain and fatigue.
High-dose Therapy and Autologous Stem Cell Transplantation
This InfoGuide is intended for patients with myeloma, their families and friends. It provides information about high-dose therapy and autologous stem cell transplantation and aims to clarify and explain the process and what to expect.
Clinical Trials as a Treatment Option InfoGuide
This InfoGuide is written for patients with myeloma, their families and friends. It is intended to help clarify and explain the clinical trial process and answer frequently asked questions. The information provided can help with decision-making on whether a clinical trial is the right treatment option for each patient’s specific situation.
Myeloma Bone Disease InfoGuide
Myeloma Bone Disease is the first in a series of InfoGuides published by Myeloma Canada. This InfoGuide is a valuable resource to help you better understand myeloma bone disease, and the options available for its management and treatment.
Understanding Your Blood and Blood Tests InfoGuide
Understanding Your Blood and Blood Tests is the second publication in the Myeloma Canada InfoGuide Series. This InfoGuide will help you learn more about the different types of blood cells, the effects of myeloma and myeloma treatments on the blood, and the key blood tests involved in diagnosing and monitoring myeloma.
Myeloma and the Kidney InfoGuide
This InfoGuide is written for patients with myeloma, their families and friends. It explains the role of the kidneys, why and how myeloma may affect the kidneys, the symptoms of kidney disease and how it is diagnosed and managed.