Update on the COVID-19 pandemic

Information regarding COVID-19 is in constant change, as is the situation regarding vaccination and prioritization for immune-compromised individuals.

If you have any COVID-19-related questions, we’ve created a specific COVID section on our website that can be accessed by clicking here or by selecting the “News & Events” tab from our homepage. In this section, you’ll find the latest news and information about the pandemic in Canada from trustworthy and reliable sources.

Any specific questions that you may have regarding the COVID-19 vaccination, delays between vaccine dosing, and prioritization within your province are best answered by your healthcare team. They’re the ones who know you and your particular situation and are therefore in a position to best address your unique concerns.

Created by, and entirely focused on, Canadians impacted by myeloma, Myeloma Canada is the only national charitable organization committed to providing you with the most up-to-date and reliable information on myeloma. Some of the ways we do this is through our monthly e-newsletter, “Myeloma Matters”, as well as through our social media platforms.

Please don’t hesitate to contact us at contact@myeloma.ca or toll-free at 1-888-798-5771 with any questions regarding our programs and services.

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Advantages & Disadvantages

Participating in a clinical trial is completely voluntary. The main benefit of participating in clinical trials is access to new treatment options that can be potentially life-saving/extending and/or significantly improve quality of life, people participate in clinical trials for a variety of reasons. These include:

  • Close monitoring of any potential side effects by the clinical trial team
  • Care provided by a leading physician in the field of myeloma research
  • Helping accelerate new drug approvals and/or their reimbursement through the evidence generated from the trial
  • Helping researchers find better treatment options, advance myeloma research and improve the way patients will be treated in Canada, and at their cancer centre

However, there are some potential disadvantages of participating in clinical trials, related to the treatment being studied. The treatment may:

  • Not work for a specific person
  • Be ineffective or less effective than the current standard of care treatment
  • Result in unpleasant, serious or unknown side effects
  • Result in extended time being spent at the hospital or clinic

Depending on where you live and the study protocol (written plan), another important consideration may be the amount of time and cost related to travelling for treatments and/or clinic visits.
 

Questions for your Healthcare Team

  • How will my daily life be affected by participating in this study?
  • Can I talk to other people who are participating in the study?
  • What are the possible short- and long-term benefits and risks?
  • What other options do I have?
  • How do the possible risks and benefits of this trial compare to those other options?