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Myeloma Canada Patient Advisory Council

Early in 2015, the Myeloma Canada Board of Directors approved the creation of the Patient Advisory Council (PAC). The primary purpose of the PAC is to function as an advisory to the Board of Directors on matters important to patients, caregivers and support groups, providing the patient perspective on national and regional issues to the Board.  

One of the major accomplishments of the PAC in 2016 was a national online survey conducted for myeloma patients and caregivers across Canada. The purpose was to gain insight from respondents on the programs and services currently offered by Myeloma Canada and provide suggestions for the future. We would like to thank the PAC for preparing this important survey, the Support Group Leaders for assisting with the distribution of the survey and the hundreds of patients and caregivers who responded with their valuable input.    
The 2016 Support Group Leader's Summit in Edmonton

The PAC also participated and assisted in the planning of several Myeloma Canada events including: the National Conference, Scientific Roundtable, Support Group Leader and Advocacy Summits, the Awareness Day, and the Family Medicine Forum. Most notably however, was the development of the Support Group Leader toolkit, which has been enthusiastically received by Support Group Leaders across the country.

 

The PAC members are as follows:

Lorelei Dalrymple, Chair

Lorelei has been very active in the myeloma community for seven years. Lorelei has held various roles in the Myeloma Alberta Support Society, including President for three years, and is currently Past President. She has been a very active member of the PAC for two years, including time as Interim Chair. Lorelei also participated in the planning and conducting of various very successful Myeloma Canada events and initiatives, including the 2016 Support Group Leaders and Advocacy Summits, the Awareness Day at the Alberta Legislature, and the Early Diagnosis Program. Lorelei can be reached at lorelei_at_home@hotmail.com

David McConkey, Atlantic Canada Representative

David is the Support Group Leader with Myeloma NL. He is a person living with myeloma and committed to living life fully on Change Islands and in St John's Newfoundland & Labrador. David worked as a counsellor for over 30 years and was known as a long-distance runner. He is currently actively involved with aspects of family, community and the environment as well as artistic pursuits. David's contact information is  sunshyneontherock@hotmail.ca

Deb McKnight​, Ontario Representative

Deb lives in rural Ontario. After staying at home to raise her two children, she returned to school full-time, graduating from Sir Sanford Fleming College in Sporting Goods Business. She worked within the sporting goods industry for six years before changing careers to the insurance industry. During her 12 years

as a licensed insurance broker, she completed both CIP (Chartered Insurance Professional) and CPIB (Canadian Professional Insurance Broker) designations, while working full-time.

After a lengthy illness, Deb was diagnosed with multiple myeloma in December 2016, and had a stem cell transplant in June 2017. Having the good fortune to have achieved a complete response, Deb remains in good health.

Now retired, she enjoys life to the fullest. She loves travelling, taking Pilates & Yoga classes, reading, spending time with family & friends, and working with a local dog rescue organization. Deb and her toy poodle Coco also volunteer with Trent Hills Therapy Dogs, making weekly visits to the local hospital.

Glenn Hussey​, Ontario Representative

Glenn, a Newfoundlander, studied at Memorial University before moving to Ottawa where he completed his studies at Carleton University.

He worked for the federal public service for 40 years focusing on policy, strategic planning and client service. Following Glenn’s retirement in 2015, he acted as a caregiver for his wife who was in complex, continuing care until her passing in 2017. Glenn discovered that he had the markers for multiple myeloma in 2008, but didn't require treatment until 2017.

Following back-to-back stem cell transplants in 2018, Glenn is currently medically stable. He is a writer, a fitness lover, and has been an active community volunteer for youth sports (soccer and figure skating).

Glenn continues to share his passion for soccer, especially Manchester United, with family and friends. He was awarded the Commemorative Medal for the 125 th Anniversary of the Confederation of Canada for his contribution to his community.

Keith Taylor, Western Canada Representative

Born in England, Keith was a police officer in the Metropolitan Police, London and then the Vancouver Police. He studied at the University of British Columbia, Cambridge University and Sheffield University. He has worked in research, planning and management roles with the Calgary Police, the Justice Institute of BC and Canada Post in Ottawa. Keith is a partner in a consulting firm which specializes in police, justice and community issues. He has served on several boards and committees. Keith is active in short course triathlons and photography. He has enjoyed several interesting photographic assignments including travel around the world taking pictures for the UN Year of the Family. Keith is very close to his 2 daughters. He was diagnosed with myeloma in 2012 and has been in remission for 5 years. Keith's contact information is keithbtaylor@telus.net

Susan McLean, Western Canada Representative

Susan is a retired high school English teacher who has studied at many universities: UBC, U of Ottawa, U of Saskatchewan, and McGill. She was also the president of the BC Teachers of

English Language Arts and worked with

the BC Ministry of Education to help write the new English curriculum. Living in Nanaimo, BC, she enjoys an active outdoor life, yoga, swimming, gym workouts, and playing in an ensemble at the Nanaimo Conservatory of Music. She and her husband enjoy spending time with their children and grandchildren, travelling, and have lived in five different Canadian provinces!

Susan was diagnosed with multiple myeloma in 2016 and has been in remission for nearly two years. She is the co-support group leader for the Nanaimo Support Group, helped start the first Vancouver Island Multiple Myeloma March, as well as the first Cinco de Mayo fundraising dinner.

 

Hervé Benoit, Quebec Representative  

hervebenoit4@gmail.com