Update on the COVID-19 pandemic

Information regarding COVID-19 is in constant change, as is the situation regarding vaccination and prioritization for immune-compromised individuals.

If you have any COVID-19-related questions, we’ve created a specific COVID section on our website that can be accessed by clicking here or by selecting the “News & Events” tab from our homepage. In this section, you’ll find the latest news and information about the pandemic in Canada from trustworthy and reliable sources.

Any specific questions that you may have regarding the COVID-19 vaccination, delays between vaccine dosing, and prioritization within your province are best answered by your healthcare team. They’re the ones who know you and your particular situation and are therefore in a position to best address your unique concerns.

Created by, and entirely focused on, Canadians impacted by myeloma, Myeloma Canada is the only national charitable organization committed to providing you with the most up-to-date and reliable information on myeloma. Some of the ways we do this is through our monthly e-newsletter, “Myeloma Matters”, as well as through our social media platforms.

Please don’t hesitate to contact us at contact@myeloma.ca or toll-free at 1-888-798-5771 with any questions regarding our programs and services.

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I am Newly Diagnosed

A myeloma diagnosis comes with its own unique set of emotional hurdles and no one understands this better than another person living with myeloma.

Do you recall the day you heard the words ‘You have myeloma?’ I vividly recall that day in 2002 when I was told that I had an incurable disease  I had never heard of and that I had three to five years to live. I remember being overwhelmed by feelings of fear, panic, dread, terror but above all a feeling of aloneness.

Co-Founder and Chairman, Myeloma Canada

Aldo Del Col

 A myeloma diagnosis can feel overwhelming, but you are not alone. The apprehensions you may be experiencing are a normal part of coming to terms with your diagnosis. Watch the video below to hear from other patients and learn about available resources.

Although myeloma is an incurable disease, it is treatable and many patients go on to lead full lives after diagnosis. With increasing research and emerging treatments, the overall outlook for patients is steadily improving. To ensure that you get the most accurate information available about your diagnosis, be sure to question what you read, especially on the Internet. It is always a good idea to check the information against credible and up-to-date sources.

Now What?

After diagnosis, you’ll likely have several questions of your own. The following resources are available to support and help you get through the process of managing and coping with the disease, whether you’re a patient, a family member of a patient, or a friend.

Multiple Myeloma Patient Handbook

Designed to provide educational support to patients, caregivers, families and friends, this educational handbook gives you accurate and clear information on myeloma. Topics cover types of myeloma and their symptoms, how the disease is diagnose and the treatment options available in Canada.

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ADDITIONAL EDUCATIONAL RESOURCES

 

Talk to Someone: Find Support

Meet other patients, caregivers, and their families at a local myeloma support group near you. Support groups can help you cope with a myeloma diagnosis and provide important information about the disease and its treatment.

FIND A SUPPORT GROUP IN YOUR AREA

Speak to our Peer-to-peer Navigator

Debbie Basevitz, a retired nurse and caregiver of a myeloma patient, generously initiated a peer-to-peer program for patients and caregivers. The program is intended to provide practical advice, and help you better navigate the Canadian healthcare system.

FIND OUT MORE