Update on the COVID-19 pandemic

Information regarding COVID-19 is in constant change, as is the situation regarding vaccination and prioritization for immune-compromised individuals.

If you have any COVID-19-related questions, we’ve created a specific COVID section on our website that can be accessed by clicking here or by selecting the “News & Events” tab from our homepage. In this section, you’ll find the latest news and information about the pandemic in Canada from trustworthy and reliable sources.

Any specific questions that you may have regarding the COVID-19 vaccination, delays between vaccine dosing, and prioritization within your province are best answered by your healthcare team. They’re the ones who know you and your particular situation and are therefore in a position to best address your unique concerns.

Created by, and entirely focused on, Canadians impacted by myeloma, Myeloma Canada is the only national charitable organization committed to providing you with the most up-to-date and reliable information on myeloma. Some of the ways we do this is through our monthly e-newsletter, “Myeloma Matters”, as well as through our social media platforms.

Please don’t hesitate to contact us at contact@myeloma.ca or toll-free at 1-888-798-5771 with any questions regarding our programs and services.

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Talking about it

You may hesitate to speak your mind for fear of causing pain, but honest discussions foster connection and engagement with life. At the same time, you don’t want to get stuck in a pattern of reminiscing about “the way things were.” Rather than dwelling on what you miss, keep the focus on the here and now. If a sensitive issue arises, deal with it sooner rather than later to prevent resentment from settling in. Perhaps most important of all is to open the door for your loved one to talk, while listening without judgment.

Speaking to Other People

If you are the one to inform other people about the diagnosis, it may be best to keep the initial conversation short and simple, while stating that you’ll be happy to answer questions at a later date. You can also give people a copy of the Caregiver Handbook or the Multiple Myeloma Patient Handbook to review. And remember, it goes both ways: family and friends can help comfort you and serve as a sounding board for some of your own concerns.

Speaking to Children

If you and your loved one have children, you may wonder what to tell them. While your first instinct may be to shield them from pain, they will surely sense that something is wrong. Saying nothing may leave them scared and confused. In general, children cope better with some information than with none at all. Keep it simple and age-appropriate, and always leave children with hope. The hospital or cancer centre’s social worker can also help by providing suggestions and strategies on how to speak with children.