Update on the COVID-19 pandemic

Information regarding COVID-19 is in constant change, as is the situation regarding vaccination and prioritization for immune-compromised individuals.

If you have any COVID-19-related questions, we’ve created a specific COVID section on our website that can be accessed by clicking here or by selecting the “News & Events” tab from our homepage. In this section, you’ll find the latest news and information about the pandemic in Canada from trustworthy and reliable sources.

Any specific questions that you may have regarding the COVID-19 vaccination, delays between vaccine dosing, and prioritization within your province are best answered by your healthcare team. They’re the ones who know you and your particular situation and are therefore in a position to best address your unique concerns.

Created by, and entirely focused on, Canadians impacted by myeloma, Myeloma Canada is the only national charitable organization committed to providing you with the most up-to-date and reliable information on myeloma. Some of the ways we do this is through our monthly e-newsletter, “Myeloma Matters”, as well as through our social media platforms.

Please don’t hesitate to contact us at contact@myeloma.ca or toll-free at 1-888-798-5771 with any questions regarding our programs and services.

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Taking Care of Yourself

Caregivers often become exhausted and feel like they’ve lost control over their life – and it’s common to neglect looking after yourself properly while trying to handle both caregiving and your regular daily responsibilities. It’s important to remember that a caregiver cannot possibly be at their best if they’re physically or emotionally drained. When exhausted, you’re more likely to make bad decisions and take your frustrations out on your loved one. In the long run, caregivers who neglect looking after themselves are at a higher risk of experiencing burnout and other health issues.

Your health and well-being is a priority. Not taking care of yourself can result in long-term health problems, depression and anxiety. Be sure to take time for yourself and do the things you enjoy. Try to prioritize what is most important, and put aside what is not in terms of caregiving and your well-being.

Rather than thinking about what lies ahead, one of the most important things you can do for your mental health is to try and live in the moment and take things one day at a time. If you need a break from caregiving, arrange for a professional to come into your home, or consider getting respite care (eg, short stay in a facility) for your loved one.

Recognizing When You’re Burnt Out

The line between “working hard” and “burnt out” varies from person to person. That said, here are some signs that may help you differentiate between the two.

State of Mind 

How it May Express Itself

Denial

You refuse to consider the seriousness of the disease: “I know my loved one will get better.”

Impatience

You’re annoyed by everyone’s questions: “If I have to explain myeloma one more time, I’ll scream.”

Anxiety

You worry constantly about what the future holds and whether you can manage it.

Exhaustion

You don’t have the energy to complete daily tasks and constantly fight the urge to lie down.

Lack of Concentration

You are more forgetful than usual, resulting in missed tasks, deadlines and appointments.

Withdrawal

You don’t care about engaging in activities that once brought you pleasure and don’t take steps to get together with other people.

General “Bad Feeling”

You can’t remember the last time you felt energetic and positive.