Update on the COVID-19 pandemic

Information regarding COVID-19 is in constant change, as is the situation regarding vaccination and prioritization for immune-compromised individuals.

If you have any COVID-19-related questions, we’ve created a specific COVID section on our website that can be accessed by clicking here or by selecting the “News & Events” tab from our homepage. In this section, you’ll find the latest news and information about the pandemic in Canada from trustworthy and reliable sources.

Any specific questions that you may have regarding the COVID-19 vaccination, delays between vaccine dosing, and prioritization within your province are best answered by your healthcare team. They’re the ones who know you and your particular situation and are therefore in a position to best address your unique concerns.

Created by, and entirely focused on, Canadians impacted by myeloma, Myeloma Canada is the only national charitable organization committed to providing you with the most up-to-date and reliable information on myeloma. Some of the ways we do this is through our monthly e-newsletter, “Myeloma Matters”, as well as through our social media platforms.

Please don’t hesitate to contact us at contact@myeloma.ca or toll-free at 1-888-798-5771 with any questions regarding our programs and services.

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Collecting information

Collecting information can help you and your loved one better understand, cope and manage the condition. As early as possible following the diagnosis, it is helpful to start collecting and organizing key information such as:

  • Name and contact information for members of the healthcare team
  • Dates and the reason/purpose of all appointments
  • Copies of lab results
  • Record of energy and pain levels at different times during the day

Consider preparing a chart with treatment schedules, prescriptions and lab results, and keep it where their medications are stored.

You can also use electronic or online tools such as the Myeloma Monitor, an application (app) designed specifically for people living with multiple myeloma and their caregivers. It is designed to help store and track information related to the disease, over time, in a centralized location. The secure (ie, password protected) program can run on computers and mobile devices (ie, smart phones and tablets), where all of the data is encrypted to protect your information. All of the information entered is confidential and belongs to you. Under no circumstances will your information be shared with anyone.

MYELOMA MONITOR

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