FR

Make a donation

Myeloma Canada Patient Advisory Council

Early in 2015, the Myeloma Canada Board of Directors approved the creation of the Patient Advisory Council (PAC). The primary purpose of the PAC is to function as an advisory to the Board of Directors on matters important to patients, caregivers and support groups, providing the patient perspective on national and regional issues to the Board.  

One of the major accomplishments of the PAC in 2016 was a national online survey conducted for myeloma patients and caregivers across Canada. The purpose was to gain insight from respondents on the programs and services currently offered by Myeloma Canada and provide suggestions for the future. We would like to thank the PAC for preparing this important survey, the Support Group Leaders for assisting with the distribution of the survey and the hundreds of patients and caregivers who responded with their valuable input.    
The 2016 Support Group Leader's Summit in Edmonton

The PAC also participated and assisted in the planning of several Myeloma Canada events including: the National Conference, Scientific Roundtable, Support Group Leader and Advocacy Summits, the Awareness Day, and the Family Medicine Forum. Most notably however, was the development of the Support Group Leader toolkit, which has been enthusiastically received by Support Group Leaders across the country.

The PAC members are as follows:

Lorelei Dalrymple, Chair

Lorelei has been very active in the myeloma community for seven years. Lorelei has held various roles in the Myeloma Alberta Support Society, including President for three years, and is currently Past President. She has been a very active member of the PAC for two years, including time as Interim Chair. Lorelei also participated in the planning and conducting of various very successful Myeloma Canada events and initiatives, including the 2016 Support Group Leaders and Advocacy Summits, the Awareness Day at the Alberta Legislature, and the Early Diagnosis Program. Lorelei can be reached at lorelei_at_home@hotmail.com

Julie Salsman, Vice Chair

Julie has been very involved in the Myeloma Community, for 7 1/2 years. Julie co-founded, and now co-chairs the Nova Scotia Myeloma Support Group, and has helped very many patients throughout Atlantic Canada. She too has been very active with Myeloma Canada and as a PAC member. Julie has co-led quarterly support group leader conference calls for the past five years. She emceed the National Conference in Halifax in 2015. She also is taking a leadership role in developing a comprehensive Support Group Leaders Tool Kit, and participated in planning and conducting the Support Group Leaders Summit. Contact Julie at jsalsman@accesscable.net

David McConkey, Atlantic Canada Representative

David is the Support Group Leader with Myeloma NL. He is a person living with myeloma and committed to living life fully on Change Islands and in St John's Newfoundland & Labrador. David worked as a counsellor for over 30 years and was known as a long-distance runner. He is currently actively involved with aspects of family, community and the environment as well as artistic pursuits. David's contact information is  sunshyneontherock@hotmail.ca

Julie Gibbons, Ontario Representative

Julie  graduated from Fanshawe College and McMaster University and worked in a variety of roles as a registered nurse until her retirement in 2016. These roles included bedside nurse, nurse educator, clinical nurse specialist, nursing professor and medical education manager. During the last 6 years of her career, Julie specialized in multiple myeloma and was a senior national manager for medical education at a major biopharmaceutical company. She developed excellent relationships and worked closely with myeloma healthcare experts from across Canada and internationally. On the personal side, Julie and her husband embrace a "joie de vivre" and revel in time spent with family, especially their 4 grandchildren. Julie enjoys golfing, travelling, learning, cooking and spending time outdoors. Her contact information is j_gibbons@live.ca

Keith Taylor, Western Canada Representative

Born in England, Keith was a police officer in the Metropolitan Police, London and then the Vancouver Police. He studied at the University of British Columbia, Cambridge University and Sheffield University. He has worked in research, planning and management roles with the Calgary Police, the Justice Institute of BC and Canada Post in Ottawa. Keith is a partner in a consulting firm which specializes in police, justice and community issues. He has served on several boards and committees. Keith is active in short course triathlons and photography. He has enjoyed several interesting photographic assignments including travel around the world taking pictures for the UN Year of the Family. Keith is very close to his 2 daughters. He was diagnosed with myeloma in 2012 and has been in remission for 5 years. Keith's contact information is keithbtaylor@telus.net

Hervé Benoit, Quebec Representative  

hervebenoit4@gmail.com