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I am Newly Diagnosed

Being diagnosed with cancer comes with its own unique set of emotional hurdles. Reactions to a diagnosis of myeloma are as varied as the patients involved.

Do you recall the day you heard the words ‘You have myeloma?’ I vividly recall that day in 2002 when I was told that I had an incurable disease  I had never heard of and that I had three to five years to live. I remember being overwhelmed by feelings of fear, panic, dread, terror but above all a feeling of aloneness.

Co-Founder and Chairman, Myeloma Canada

Aldo Del Col

A diagnosis of myeloma doesn’t only affect patients; it also affects their family and friends. It’s important to remember that your reaction to the diagnosis, and those of the people around you, are a normal part of coming to terms with the diagnosis.

This is Not the End

Although myeloma is an incurable disease, it is treatable and many patients go on to lead full lives after diagnosis. It is not the end. With increasing research and emerging treatments, the overall outlook for patients is steadily improving. To ensure that you get the most accurate information available about your diagnosis, be sure to question what you read, especially on the Internet. It is always a good idea to check the information against credible and up-to-date sources.

Now What?

After diagnosis, you’ll likely have several questions of your own. The following resources are available to support and help you get through the process of managing and coping with the disease, whether you’re a patient, a family member of a patient, or a friend.

Multiple Myeloma Patient Handbook

Designed to provide educational support to patients, caregivers, families and friends, this educational handbook gives you accurate and clear information on myeloma. Topics cover types of myeloma and their symptoms, how the disease is diagnose and the treatment options available in Canada.

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ADDITIONAL EDUCATIONAL RESOURCES

 

Talk to Someone: Find Support

Meet other patients, caregivers, and their families at a local myeloma support group near you. Support groups can help you cope with a myeloma diagnosis and provide important information about the disease and its treatment.

FIND A SUPPORT GROUP IN YOUR AREA

Speak to our Peer-to-peer Navigator

Debbie Basevitz, a retired nurse and caregiver of a myeloma patient, generously initiated a peer-to-peer program for patients and caregivers. The program is intended to provide practical advice, and help you better navigate the Canadian healthcare system.

FIND OUT MORE